Everyone will give you an opinion but no one knows what they would really do unless they are actually faced with the situation (I always swore I would never have a CVS test because of the risk but when faced with the reality I've had it the next day! The FDA says this system's false positives are the result of two issues: incorrect use of test equipment and outdated testing software. The FDA recommends that any laboratory staff and healthcare providers using the Thermo Fisher Scientific TaqPath COVID-19 Combo Kit immediately update their software and read the latest set of instructions to prevent incorrect equipment usage. Your hospital can advise you. Whatever the decision will be, both it'll hurt so deeply. Woman just called to say she's sleeping with my partner, Share your stories about your children’s favourite toys with Munchkin Nursery Steriliser - £100 voucher to be won, Your questions about the Green Homes Grant have been answered by the experts from the BEIS and EST, How do you style your children’s hair? Good luck. According to the Associated Press (AP), Thermo Fisher's test was approved by the FDA for use in mid-March—just one of the more than 200 coronavirus testing methods that the agency had approved since February. There is no "false" positive, because the test does not screen positives and negatives. We had a local children's centre that were in contact with me as soon as the hospital told them & they offered me a lot of support (they had a down's unit). Unfortunately no cure of DS. Incorporating daily exercise routines into your new work schedule is easier than you think. CNN's Dr. Sanjay Gupta takes a deeper look at a coronavirus patient's recovery, examining the potential long term effects of the illness. You will become a stronger person and there is loads of support out there. So I'm so sorry you have had this news and "Whatever you end up deciding, take care of yourself" and "whatever you decide, you will be deciding thinking of the quality of life you can give your child, it is a difficult decision but not selfish. We found a parent support group in London, they'll meet on the 1st of Oct. its a bit far from where we live but its worth going and getting some ideas, advices from parents. Results: At 15 years of age the detection rate was 77% at a 1.9% false positive rate, 84% at a 4% false positive rate at age 30, rising to 100% at a 67% false positive rate at age 49. RELATED: For more up-to-date information, sign up for our daily newsletter. Try not to stress out too much until you know more. Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters. Unfortunately, the results don't always get it right. The risk of a positive screening result being a Down's pregnancy is considera … Age related detection and false positive rates when screening for Down's syndrome in the first trimester using fetal nuchal translucency and maternal serum free betahCG and PAPP-A Hi, if you're on facebook check out 'Ollie and Cameron" - a page set up by the mum of twin boys with DS with info, videos, photos etc so you can learn something about their journey so far. And according to experts at Harvard Medical School, false positives are less likely, with a reported rate of 5 percent or lower. Please give me any advice, or share your experiences that you might have.Thank you so much, Sorry the result wasn't the one you were hoping for :-( I have experience of caring for Down's children and they are lovely caring people with a lot to give and many lead semi independent happy lives and get jobs. However, it is not an issue for a month or so as you said it is till end of the life. But I am hopeful that there is someone out there who has gone through amniocentesis test with results that read "positive" when the baby was actually fine. Also have a daughter who is nearly 5 years old. coronavirus may experience an array of symptoms, swab test conducted either on your throat or nose, more than 200 coronavirus testing methods, For more up-to-date information, sign up for our daily newsletter, anywhere between 2 to 29 percent could be false negatives, This Is Exactly When You Need a COVID Test, Doctor Says. Hi Jennifer, There are a lot of false positives with this test. x, Sorry to hear your news. In a public statement, a spokesman for Thermo Fisher said that they were working with the FDA "to make sure that laboratory personnel understand the need for strict adherence to the instructions for use.". I was of the belief anything can happen & we can't predict the future so we would deal with each thing as it came. Other causes of … There is, high and low risk. You can talk to ARC charity, they have counsellors on the phone I think to talk to.I wish you all the best whatever you decide. It's by a lady whose eldest child has DS - it was a complete surprise when he was born. Thank you ZZZZ1111, I will check the page on facebook straight away. I work with some adults with down syndrome and other SENs. The probability of Down's Syndrome once identified with an increased risk was 1:34 at … There are parent support groups that you can find on the internet, so you may want to speak to a parent about their experiences etc. Sadly our dd had severe heart & lung problems (not linked with the down's) & didn't make it. Microsoft may earn an Affiliate Commission if you purchase something through recommended links in this article. My husband says that he will support me with looking after him if we decide to carry on with the pregnancy. To use this feature subscribe to Mumsnet Premium - get first access to new features see fewer ads, and support Mumsnet. You need a detailed scan, that will tell you a lot about your baby.Downs Syndrome is a risk factor for other things, but the risk factor is never 100% guaranteed (if you see what I mean).No one should judge you for whatever you decide, btw, because they didn't have your life or baby. It screens for a number or percentage risk. Therefore have not got any clue about the disease. He is a lovely little chap and she writes positively and honestly about life with a child with DS. And for more on tracking the coronavirus, check out This Is Exactly When You Need a COVID Test, Doctor Says. And according to the U.S. Food and Drug Administration (FDA), Thermo Fisher's TaqPath test is one of the ones returning false findings. I hope you get the support you need xx. To comment on this thread you need to create a Mumsnet account.
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